Archive | 3:42 am

They said that she may never walk.

2 Sep

When Oli was born on a hot, spring night in May of 2007, I was a different person. I lived in a world where my life made sense. My life had order and structure and play dates and date nights. My life was free of specialists, prosthetic eyes, Braille, vision teachers, early intervention programs, and support groups. I had never witnessed a person look at me with pity in their eyes or felt the weight of a disability trying to drown me with its sorrow.

I was naïve.
I was over confident and cocky.
I thought I was indestructible.

I thought that I was immune to the bad and the sad things that can happen in life. Those things just didn’t happen to me. Those things happened to other people.
They happened to people that I heard talked about in whispers. They happened to people that I gossiped about on break in the cafeteria at the hospital where I worked.

“Did you hear about that mom?”
“Yeah. They said that she was a nurse. Her baby was born with a disability.”
“Yeah. I know! I couldn’t believe it!”
“I can’t believe it happened to her! She’s so nice. What is she going to do now? I don’t know what I would do if I gave birth to a special needs child.”

Suddenly I WAS that mom. Suddenly I HAD that baby.
Suddenly my life no longer had structure or play dates or date nights.
Suddenly my life was FULL of specialists, prosthetic eyes, Braille, vision teachers, early intervention programs, and support groups.

In 12 short hours my life had been turned upside down. I was drowning in sorrow and self pity and anger. I struggled with the fact that my baby had not been born in a way that I had expected. My baby had fallen somewhere well beyond my comfort level.

What was I supposed to do with a blind baby?

As the months and then the years wore on, I let my daughter live outside of what I was comfortable with. As each new diagnosis came, each one seeming to be worse than the last, I grew more and more uncomfortable with the challenges that came with raising such a special little girl. I was not confident in my abilities to parent her.

I didn’t know what I was doing! I didn’t know if I was doing this right or this wrong or this just mediocre or this just horrible!

They told me that she may never walk or talk. She may never do this or do that…

So I stayed right where I was. Sad… Angry… Alone…

I stayed there until it became so uncomfortable and so miserable that I had to change the way that I looked at our situation. I had to just accept that this is what had happened.

Instead of looking at it as unfair and unjust, I started looking at it as an opportunity. I began looking at it with serving a reason and a purpose. I stopped feeling sorry for both of us and began realizing that just because she had different abilities than many other children, they were only disabilities if I disabled her myself. Which is exactly what I had been doing by feeling sorry for her and thinking that she couldn’t do something because she was blind and couldn’t walk, or talk, and was autistic, and had seizures.

I stopped using her diagnoses as an excuse for her NOT to do something.

I started thinking about ways to make it possible for her to do everything my other kids did.

I began letting Oli do what any other child did. I just had to do it with her.

When my other two children wanted to go in the bouncy house at the park, I went in the bouncy house with her and helped her jump.

When my other two children wanted to go on the kiddie roller coaster at the fair, I went on the kiddie roller coaster with her.

When my older son wanted to go bike riding, my husband and I bought her a bike trailer that she can pedal on her own.

It’s just what we did.

So when someone suggested that Oli do a triathlon, I jumped at the opportunity.

Why not right?!

She loves to be outside and she loves the pool. I knew that she would love being out there competing with other kids and doing the things that other kids do.

I could not NOT let her do this just because of her inability to see, or swim on her own, or bike on her own, or run. We just modified her race.

I did it WITH her.

It was the most incredible experience. I kicked with her on a board for the swim, pulled her in her bike trailer for the bike and pushed her in a jogging stroller for the run.

Close to the end of the race I pulled Oli out of her bright yellow jogging stroller and whispered to her quietly “Oli? Are you ready to cross that finish line? Let’s go! All of your friends are cheering for you! You walk across that finish line!”

Oli got out of the stroller and held my hands, walking the last part of the race.

My daughter…who some said may never learn to walk…WALKED ACROSS THE FINISH LINE OF HER TRIATHLON!!

She may not have been able to tell me how it felt to hear her name over the loud speaker, to hear all of the kids and the parents cheering her on, but the smile on her face said it all.

No words were needed to describe just how she felt at that moment.

My girl was proud of herself.
2013-08-25 09.02.07

Advertisements
thecrumbdiaries

Logan is challenged but not limited, and he is living his life like a boss. I am just lucky enough to be along for the ride.

Mommy Got Her Groove Back

How a new mom, and wife does parenting and daily life.

Lessons from my daughter

Although all doctors agreed she would do nothing.....

I'm fine, but my Mommy has issues!

Raising a daughter with special needs.

Living on the Spectrum: The Connor Chronicles

Our family's adventures in the world of ADHD and Autism.

Parenting And Stuff

Not a "how to be a great parent" blog

don of all trades

Master of none...

The Third Glance

A peek into my (Autistic) mind

One Stitch At A Time

Making my way back in time.

Disability Watchdog

Exposing Injustices for Vulnerable People

My thoughts on a page.

Living, Laughing, Loving, Loathing.

It is Well...with my Soul

Sure, my hands are full. So is my HEART!

Chopping Potatoes

And other metaphors for motherhood

This is the Corner We Pee In

Bulletins from the Parenting Trenches...

clotildajamcracker

The wacky stories of a crazy lady.

This is the place

visiting places where writers were born, lived, loved & are buried.

motherslittlesteps.co.uk/

Motherhood and Country-Coastal Living

My Dance in the Rain

The journey of my life, my path to redefine myself and a special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia who changed it all.

Prego and the Loon

Pregnant and Dealing With Domestic Violence

%d bloggers like this: